影片拍攝感謝:霜月妃、水月
Video translation::
In Taiwan
There are more than 200 kinds of rare diseases
About 70% of which is currently no cure!
Ice Bucket challenge is just a form
Let us appreciate the hard work of Amyotrophic Lateral Sclerosis!
also let the public see
More rare diseases, disadvantaged groups
As well as people who need to help
Dear sufferers , you worked hard! Refuel!
We do not Roll call
we hope this is a spontaneous activity!
Because of you! Love is not uncommon!
關於漸凍人的挑戰冰桶的活動
我們兩位的想法是正向支持!
因為挑戰冰桶的活動
更多的朋友注意到了這個社會的需要關心的地方
此次冰桶的款項我們選擇捐給
財團法人罕見疾病基金會
http://www.tfrd.org.tw/tfrd/help_a
每位罕見疾病病友真的很辛苦!
我們藉由這個活動
希望能鼓勵大家關懷社會上需要關心的每一個族群
同時也希望這份關心能夠永續傳承下去!
感謝響應發起單位
漸凍人協會 http://www.mnda.org.tw/
Liu&Hana:
https://www.facebook.com/LIU.HANA
About the Ice Bucket Challenge with Amyotrophic Lateral Sclerosis
Our thoughts are positive support!
Because the Ice Bucket Challenge
make more people noticed some place need to care in society
we would donate for Rare Disorders Foundation
http://www.tfrd.org.tw/tfrd/help_a
Each rare disease sufferers were really hard in their live!
We hope to encourage everybody to care about more group who needs to care in this activity
Also hope that this concern can be passed along sustainable!
Thanks
Amyotrophic Lateral Sclerosis Association http://www.mnda.org.tw/